[ Qualité de vie des parents d'enfants et adolescents souffrants d'infirmité motrice cérébrale ]
Volume 9, Issue 4, December 2014, Pages 1700–1707
Mustapha Mouilly1, Noureddine Faiz2, and Ahmed Omar Thami Ahami3
1 Equipe de Neurosciences Cliniques, Cognitives et Santé, Laboratoire de Biologie et Santé, Faculté des Sciences, Université Ibn Tofaïl, BP. 133, Kenitra, Morocco
2 Centre de santé communal Kaa asrass, Chefchaoun, Morocco
3 Directeur du Laboratoire de Neurosciences, Comportementales et Cognitives. Université Ibn Tofail, Kénitra, Morocco
Original language: French
Copyright © 2014 ISSR Journals. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
The parents of child with Cerebral Palsy through difficult periods in their lives, both in childhood of their son and in his adolescence. Adolescents with physical disabilities become more difficult to treat. This transition period often associated with disorders of behavior is an important factor in parental stress and causes deterioration in the quality of life. There are few studies that seek to assess the impact of cerebral palsy on the quality of life and mental health of parents.
A study protocol consisting of questionnaires, scales and grid clinical interview were distributed and completed by 67 relatives (34 mothers and 33 fathers) of children with cerebral palsy, to measure the impact of the weakness of their children on their psychological and social well- being and their quality of life.
Most of our results support our hypothesis and confirm data from the literature in this area little studied in Morocco. Indeed it seems that the suffering of parents with cerebral palsied children is more pronounced at the age of adolescence than during the phase of childhood. The impact of this pain on mothers seems more intense than on fathers. In conclusion, more having a social support and a psychological counseling, more the parent's quality of life is better.
Author Keywords: Children, Adolescents, Cerebral palsy, Quality of life, Perceived stress, Social support.
Volume 9, Issue 4, December 2014, Pages 1700–1707
Mustapha Mouilly1, Noureddine Faiz2, and Ahmed Omar Thami Ahami3
1 Equipe de Neurosciences Cliniques, Cognitives et Santé, Laboratoire de Biologie et Santé, Faculté des Sciences, Université Ibn Tofaïl, BP. 133, Kenitra, Morocco
2 Centre de santé communal Kaa asrass, Chefchaoun, Morocco
3 Directeur du Laboratoire de Neurosciences, Comportementales et Cognitives. Université Ibn Tofail, Kénitra, Morocco
Original language: French
Copyright © 2014 ISSR Journals. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
Abstract
The parents of child with Cerebral Palsy through difficult periods in their lives, both in childhood of their son and in his adolescence. Adolescents with physical disabilities become more difficult to treat. This transition period often associated with disorders of behavior is an important factor in parental stress and causes deterioration in the quality of life. There are few studies that seek to assess the impact of cerebral palsy on the quality of life and mental health of parents.
A study protocol consisting of questionnaires, scales and grid clinical interview were distributed and completed by 67 relatives (34 mothers and 33 fathers) of children with cerebral palsy, to measure the impact of the weakness of their children on their psychological and social well- being and their quality of life.
Most of our results support our hypothesis and confirm data from the literature in this area little studied in Morocco. Indeed it seems that the suffering of parents with cerebral palsied children is more pronounced at the age of adolescence than during the phase of childhood. The impact of this pain on mothers seems more intense than on fathers. In conclusion, more having a social support and a psychological counseling, more the parent's quality of life is better.
Author Keywords: Children, Adolescents, Cerebral palsy, Quality of life, Perceived stress, Social support.
Abstract: (french)
Les parents d'un enfant souffrant d'Infirmité Motrice Cérébrale, traversent des périodes difficiles durant leur vie, tant pendant l'enfance de leur fils qu'à son adolescence. Les adolescents ayant un handicap physique deviennent plus difficiles à soigner. Cette période de transition souvent associée à des troubles de comportement est un facteur important de stress parental et provoque une détérioration de la qualité de vie. Rares sont les études qui cherchent à évaluer les conséquences de l'infirmité motrice cérébrale sur la qualité de vie et la santé mentale des parents.
Un protocole d'étude composé de questionnaires, d'échelles et de grille d'entretien clinique ont été distribués et remplis par 67 parents (34 mères et 33 pères) d'enfants infirmes moteurs cérébraux, permettant de mesurer l'impact de l'infirmité de leurs enfants sur leurs bien être psychique et social et leurs qualité de vie.
L'essentiel de nos résultats corroborent nos hypothèses et confirment les données de la littérature dans ce domaine peu étudié au Maroc. En effet il semble que la souffrance des parents d'enfants infirmes moteurs cérébraux est plus accentuée à l'âge de l'adolescence que durant la phase de l'enfance. L'impact de cette souffrance sur les mères semble plus intense que chez les pères. En conclusion, plus les parents ont un soutien social et un suivi psychologique, plus leur qualité de vie est meilleure.
Author Keywords: Enfants, Adolescents, Infirmité motrice cérébrale, Qualité de vie, Stress perçu, Soutien social.
How to Cite this Article
Mustapha Mouilly, Noureddine Faiz, and Ahmed Omar Thami Ahami, “The quality of life of parents with children and adolescents suffering from cerebral palsy,” International Journal of Innovation and Applied Studies, vol. 9, no. 4, pp. 1700–1707, December 2014.
